Randy and Bailon Johnson watch a South Sydney game during a break between Bailon’s treatment for neuroblastoma. Picture: Facebook
FOUR-year-old Bailon Johnson has spent nearly a quarter of his life in hospitals.
The Junee boy has spent the last 14 months in hospitals in Newcastle and Sydney fighting neuroblastoma, a very rare and aggressive form of childhood cancer.
His father Randy Johnson launched A crowd-funding campaign to help pay for the medical bills and Bailon’s treatment was going well until his cancer returned.
However, there is hope, with a radical new treatment to be used.
It will be the first time it’s been done in Australia, Mr Johnson said, with Bailon being part of a trial of its effectiveness.
“There’s only one doctor in Australia who uses it,” Mr Johnson said.
So far there had been good signs from its use in America.
After Mr Johnson was told his son’s cancer had returned, he was told there was little hope.
“I was first told they were going to go with radiation and then make him comfortable at home,” he said.
“Because there’s a trial starting at the right time, we’re going to be a part of it.”
Mr Johnson said his son’s battle with neuroblastoma had been rough, not only on Bailon but his family.
“I’ve lost count of how many surgeries he’s had,”
“The youngest of Bailon’s sisters just understands that he’s sick while the older ones are still holding out hope.”
Despite his young age, Bailon is a mad South Sydney fan and earlier this year had the opportunity to meet the players, trainers and coach at ANZ Stadium and catch a few games.
Mr Johnson said being able to meet the team made a big difference for his son.
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